Support Groups
There are a number of support groups which are open to new members and we have been given this information to share with Inquiry participants. We have indicated below which are Facebook groups and which are contactable in other ways.
Please note that the groups below are independent of the Infected Blood Inquiry.
If you have a support group which you think should be included on this page, please contact us.
Facebook Groups (all private)
The support groups found here are all on Facebook and are set as private groups, and only members can see who's in the group and what they post.
Contaminated Blood Campaign campaigns for justice for people infected and affected by contaminated blood and blood products.
Factor 8 is for people infected and affected by Hepatitis C / HIV infected factor concentrate products in the 1970s and 1980s.
Tainted Blood Widows & Bereaved Partners supports widows/widowers and bereaved partners of haemophiliacs who died as a result of infected blood products.
The Fatherless Generation is for the children of haemophiliacs who died because of contaminated blood products.
Other Forums
The groups found here can be contacted either via a website or by email address.
HBDCA is a charity which supports the Infected Blood community through psychotherapeutic counselling. Its psychotherapists have personal insight and extensive expertise in offering this support.
To get in touch contact christina@hbdca.org.uk or 07703 747 030.
Haemophilia Scotland aims to support individuals and families in Scotland with haemophilia, von Willebrand and other bleeding disorders.
Haemophilia Northern Ireland is an independent charity based in Northern Ireland, which aims to support local people and their families affected by bleeding disorders.
Haemophilia Wales provides information, support and advocacy to people with haemophilia, von Willebrand and other bleeding disorders, including their families and carers.
Haemosexual is a community based online support group, and information resource advocating for anyone with a bleeding disorder or impacted by contaminated blood from the LGBTQ+ community.
The Birchgrove Group provides support for people with haemophilia, their wives and partners who were infected with HIV/AIDS and hepatitis C through blood products in Great Britain.
The Haemophilia Society is a UK-wide organisation for anyone infected and affected by a bleeding disorder, including haemophilia and von Willebrand.
The Hepatitis C Trust is the national UK charity for hepatitis C and provides peer-led support and information to people infected and affected through transfusions and blood products. They regularly hold online support groups for the community to meet together and a friendly and professional helpline for support, advocacy and information.
The Hepatitis C Trust support helpline
The Hepatitis C Trust infected blood community support group
The Scottish Infected Blood Forum supports people infected with hepatitis C through blood or blood products.